Congenital Heart Defects Personal Stories

Updated:Feb 10,2014
personal stories

These touching stories from parents and survivors living with congenital heart defects are filled with inspiration. Many of them are sharing their stories to reach out to the community. They share their journey to champion hope. 


Brycen: CHD Heart Warrior - Part 1Brycen: CHD Heart Warrior - Part 2

 Brycen PrincipeBrycen Principe: Very sick in his first few hours of life
When Brycen was born, a simple pulse-oximeter test was not required by his state. Fortunately, a nurse noticed his blue lips and administered the pulse-ox test. These days, surgery scars are the only clue of Brycen's heart defect.
  
Kristine and CoraKristine Brite-McCormick: Using her devastation as motivation
No parent should learn from the coroner that their baby was born with a heart defect. Now Kristine is on a mission to encourage states to require that all newborns get a simple screening.
  
Anna TriffoAnna Triffo: Loves giving hope to others
Due to several issues present at birth, Anna relies on the left side of her heart to power her body. "It makes me special." Read Anna's story.
 
  
Katherine Schroeder‘Courageous Katherine’ thrives on helping fellow heart patients
In her 13 years, Katherine Schroeder has undergone 15 surgeries or other procedures on her heart. And she still faces a lifetime of medical interventions to keep her heart running. Her journey began when she was 3 weeks old.
 
  
The Hurst FamilyThe Hurst Family: Faced heart-defect diagnosis before birth — again
Greta Hurst lost her first baby to a heart defect, and became pregnant again. A routine ultrasound revealed that this baby boy also had a defect. They named their baby boy Bronson, and two days later endured his first open-heart surgery. Read their story.
 
  
Blake Galligan and his momBlake Galligan: A Heart Warrior at age 4
By looking at him, you'd never know active 4-year-old, Blake Galligan, has a congenital heart defect. At one day old, Blake was diagnosed with hypoplastic left heart syndrome. His mom shares their story — one of hope and perseverance.
 
  
Genetic researcher Deepak SrivastavaDeepak Srivastava: Changing lives through research
Genetic researcher Deepak Srivastava is hoping his major defining moment will come soon.
Find out why.